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61. How does the public in Latin American countries view genetic and genomic data donation for research?

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dc.creatorChavarría Soley, Gabriela
dc.creatorFrancis Cartín, María Fernanda
dc.creatorMacaya Trejos, Gabriel
dc.creatorAlfaro Redondo, Ronald
dc.creatorRobarts, Lauren
dc.creatorMiddleton, Anna
dc.creatorRaventós Vorst, Henriette
dc.date.accessioned2024-12-09T15:50:40Z
dc.date.available2024-12-09T15:50:40Z
dc.date.issued2022-09-23
dc.description.abstractLarge amounts of genetic and genomic data are constantly being generated in different contexts. Making this data available for research purposes is an attractive concept with many potential benefits, but which also raises concerns. The availability of such data depends firstly on the willingness of the persons whose genetic data is being generated to share it. The “Your DNA, Your Say” anonymous online survey explores attitudes of the public regarding different aspects of genomic and medical data donation for research, and the factors that influence the decision whether to donate. It has been translated into 15 languages and has been answered by individuals from more than 20 countries.
dc.description.procedenceUCR::Vicerrectoría de Docencia::Ciencias Básicas::Facultad de Ciencias::Escuela de Biología
dc.description.procedenceUCR::Vicerrectoría de Investigación::Unidades de Investigación::Ciencias Básicas::Centro de Investigación en Biología Celular y Molecular (CIBCM)
dc.description.procedenceUCR::Vicerrectoría de Investigación::Unidades de Investigación::Ciencias Sociales::Centro de Investigación y Estudios Políticos (CIEP)
dc.identifier.doihttps://doi.org/10.1016/j.euroneuro.2022.07.149
dc.identifier.issn1873-7862
dc.identifier.issn0924-977X
dc.identifier.urihttps://hdl.handle.net/10669/100208
dc.language.isoeng
dc.rightsacceso abierto
dc.sourceAbstracts of the World Congress of Psychiatric Genetics (WCPG), September 13-17, 2022. European Neuropsychopharmacology, 63, e78-e79
dc.subjectgenetic data donation
dc.subjectgenomic data donation
dc.subjectLatin America
dc.subjectpublic opinion
dc.title61. How does the public in Latin American countries view genetic and genomic data donation for research?
dc.typecomunicación de congreso

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